Please email our online counsellor with any epilepsy related questions to firstname.lastname@example.org
Play our Quick Quiz on Epilepsy
and see if you are informed?
Total Advocacy Toolkit
First Aid Posters
Disability Inclusive Poster
Who Has Epilepsy
- Stop Stockouts and Fix the Patent Laws in Various Languages
- Activity booklet for children
- The United Nations Convention on the Rights of Persons with Disabilities (UNCRPD) “What the Convention endeavours to do," said Don MacKay, Chairman of the committee that negotiated the treaty, "is to elaborate in detail the rights of persons with disabilities and set out a code of implementation”.
Previous issues of Epinews
The Epinews is a publication prepared by people with epilepsy for people with epilepsy. It is merely facilitated by the organisation and enjoys wonderful sponsorship by Sanofi Aventis.
The organisation sends monthly newsletters by email to a subscribed audience. These newsletters contain information that pertains to epilepsy or disability as well as news on activities at the different Branches. You can subscribe on the home page of our website and read back issues found in this download section.
Epilepsy Fact Sheets
This download section contains useful fact sheets that are often required by people that live with epilepsy or those around them like family or colleagues. The fact sheets often answers the frequently asked questions and sets those at ease by presenting detailed information and a sense of "Not being alone!"
First Aid Poster for Epilepsy
Knowing what to do when a person is having a seizure can often make a huge difference in the life of a person with epilepsy. Make sure you empower yourself with this knowledge and share it with others. This poster is a handy tool for schools, libraries, the office or even at home.
Advocacy and Human Rights Booklet
This guide is for people living with epilepsy. You can use it to learn about your rights. You can also use it to talk with others about your rights. When you speak up for yourself, you are a self-advocate. When you work with others (e.g. community or a support group), you can make change happen.
Guide to Reasonable Accommodation
Particularly focusing on the South African policy context this booklet examines the provision of reasonable accommodation within the workplace and provides step by step guidance to ensure an understanding of its role within the world of work. It is written to empower persons with epilepsy to understand and access their rights as well as to address the unimagined concerns and logistical challenges sometimes experienced by employers.
- Epilepsy and Driving
- Other Useful Links
The International League Against Epilepsy's (ILAE) mission is to ensure that health professionals, patients and their care providers, governments, and the public world-wide have the educational and research resources that are essential in understanding, diagnosing and treating persons with epilepsy.
The goals of the ILAE are:
The International Bureau for Epilepsy (IBE) was established in 1961 as an organisation of laypersons and professionals interested in the medical and non-medical aspects of epilepsy. The IBE addresses such social problems as education, employment, insurance, driving licence restrictions and public awareness.
As a trusted third party custodian of comprehensive personal health information, they provide a complete MedicAlert® life-saving system built around a repository of health information that enables members to manage their personal health records while maintaining security, privacy and confidentiality.
The MedicAlert® repository can connect to and provide critical medical information between patients, providers and first responders 24hrs a day anywhere in South Africa.
NACOSS (National Coalition for Social Services) is a voluntary coalition of organisations committed to providing developmental social welfare services to the vulnerable and people in need throughout South Africa.
The Tea Room is a free online chat forum for teenagers with epilepsy created by the Scottish Epilepsy Initiative. It provides a place where teenagers can chat with others about anything and everything. Teens can make friends and get support from others from anywhere in the world who deal with the challenges epilepsy brings.